RecruitingAcute Hepatic Porphyria

ELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)

Eligible age

12+ yrs

Accepts

All genders

Locations

13 states

Healthy volunteers

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About this study

This global patient registry is being conducted to characterize the natural history and real-world clinical management of patients with AHP, and to further characterize the real-world safety and effectiveness of givosiran and other approved AHP therapies.

Sponsor: Alnylam Pharmaceuticals