RecruitingHistiocytosisLangerhans Cell HistiocytosisErdheim-Chester Disease
Histiocytic Disorder Follow-up Study
Eligible age
0–89 yrs
Accepts
All genders
Locations
1 state
Healthy volunteers
No
See if you qualify for this study
Answer a few quick questions about your location and health. Takes about a minute.
About this study
The purpose of the study is to describe the burden of chronic health conditions, psychological dysfunction, chronic pain, healthcare utilization, worse health-related quality of life, overall mortality, and cause-specific mortality among individuals with histiocytic disorders
Sponsor: University of Alabama at Birmingham
You may qualify if…
- ✓ diagnosis of histiocytic disorder at any age
- ✓ 1. Langerhans cell histiocytosis,
- ✓ 2. Erdheim-Chester disease,
- ✓ 3. Rosai-Dorfman disease,
- ✓ 4. Xanthogranuloma,
- ✓ 5. Mixed histiocytosis
- ✓ 6. Malignant histiocytosis (Histiocytic sarcoma, langerhans cell sarcoma, interdigitating cell sarcoma)
- ✓ 7. Hemophagocytic lymphohistiocytosis
You may not qualify if…
- ✕ None
Where it's recruiting
Alabama
Birmingham
Source: ClinicalTrials.gov · NCT05915208 · last updated 2026-06-12